About

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Hi, I’m Nathalie Traller. I’m 15 years old and have ASPS. I love dolphins, soccer, spending time outside, and reading. I’ll be writing on this blog about what it’s like to be a high school student with cancer, and my personal experiences as well. I hope this will give people a better understanding of what my life is like on an everyday basis.

4 thoughts on “About

  1. Pingback: About | Randomness, Rants, Raves

  2. We are friends of friends of yours now living in Boston, rooting for you and wishing you healing and good health. Sending love and prayers to you.

  3. Dear Nathalie,
    I am re-posting this message from the “IT’S HARD TO FIGHT WHEN THE FIGHT AIN’T FAIR” topic with some additional comments:
    My name is Bonni Hess. I am the mother of a now 32 year old daughter who has been courageously fighting ASPS for the past almost 13 years since being diagnosed with this extremely rare and very challenging disease at age 19 in July 2001. My daughter’s name is Brittany and during her almost 13 year battle she has undergone 23 surgeries/ablations/radiosurgeries and participated in 3 clinical trials. VERY thankfully, her third and most recent clinical trial which is testing the promising new Tyrosine Kinase Inhibitor(TKI) targeted therapy drug called Cediranib has now provided her with five years of disease stability with no new tumors and dramatic shrinkage and disappearance of her previous innumerous and widely disseminated ASPS mets. Because of the extreme rarity of ASPS, several years ago I, my husband, and a couple of other parents of ASPS patients helped to establish an international organization and Web site for ASPS patients and their families to access and share invaluable researched and anecdotal ASPS treatment information as well as strengthening support and encouragement The Web site is CureASPS.org and I strongly encourage and urge you and/or your parents to visit the site and register and participate on it. It was through information shared on the CureASPS.org Discussion Board by a young man from England that we first heard/learned about Cediranib, which at that time Brittany’s oncologists at Seattle Cancer Care Alliance were not even familar with.
    I am so very sorry for your ASPS diagnosis dear Nathalie and my heart breaks for what I know far too well that you and your parents are going through. You sound like a very strong and courageous young woman with a very positive and determined attitude which is so very important in this difficult battle, and which reminds me so much of our precious Brittany. You, also like Brittany, have a special gift for writing and expressing yourself so beautifully, and reaching out to touch and inspire other Lives. Brittany worked as a CNA in the oncology unit at a local hospital until debilitating side effects of her ASPS heartbreakingly made it impossible for her to continue. Her great Hope and dream, like yours, is to someday be able to obtain a nursing degree and provide caring compassionate care for patients as someone who truly knows and understands the needs and feelings of a patient. It would be wonderful to be able to meet you and your parents someday since you Live in Portland and we Live in the Seattle area, so if you are ever in the Seattle area and your time and schedule allow, please let me know so we can get together to share some special hugs and time with each other.
    Please know that you and your family are not alone in this battle with this insidious disease. I and the other ASPS Community members on the CureASPS.org Web site and Discussion Board share this battle with you and are available to help you in any way that we can with shared information, support, and special caring.
    Take care dear Nathalie, visit the CureASPS.org site when your time allows, feel free to contact me by e-mail at BonniHess@aol.com, stay strong, let Hope continue to lead you through each day, and know that my most caring thoughts and very best wishes are with you and your family.
    Reaching out to share special hugs, deepest caring, healing wishes, warm friendship, and continued Hope,
    Bonni Hess

  4. Nathalie,
    I stumbled onto your site because a friend shared it on FB…glad that I did..as you can see above and below this message, many support you. From the little I read, I know that you will/and you are unstoppable!! Thank you for your writing and your beautiful soul. Being a Mother of 3 kids a bit younger then yourself…I would like to know that they have the courage,strength and passion that you have…I think that must be because you are an Oregonian… 🙂
    Much Love!!

    Juli DeFilippis
    Former Portlandian and now San Diegan.

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